The Tiniest Babies^™

Welcome

We have developed this website to serve as a registry for the world's smallest surviving babies. Because the survival of infants with birth weights less than 400 grams (14.1 ounces) is very uncommon, it is not possible for meaningful data on the outcomes of these infants to be collected in a single neonatal intensive care unit (NICU) or even a network of NICUs. We hope over time to collect and collate data on the long-term health, growth, and development of this vulnerable group of infants. The infants listed in this registry include those reported in the lay media as well as medical journals. The registry also includes infants submitted directly to the registry by the patient or a family member with verification by a health provider. In addition, some infants are submitted directly by the health provider. We have not attempted to verify the information listed, since in most cases this would not be possible.

We invite health care providers and parents to send us corrections or updates of data already included in the registry or to submit new cases using the links below. We hope that the information provided here will be of some help to physicians and parents faced with difficult decisions about obstetrical and pediatric care in situations where such a tiny baby may be born. The survival of these tiny babies illustrates the well known fact that gestational age is a more important factor than birth weight in determining the prognosis of an extremely premature baby.

The Tiniest Babies Registry website has been recently upgraded, but some features are not yet working correctly. Please report any difficulties to edward-bell@uiowa.edu. We apologize for any inconvenience, and thank you for your patience while we correct any problems.

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